Type 1 Exclusively G-Tube Fed. Type 1, age 18 months. Type 2 Orally Fed Plus G-Tube Fed. What is the Amino Acid Diet? What is the Amino Acid Diet? This information is based on opinions and experiences compiled from parents of children with SMA and should not necessarily be relied upon as an alternative to medical advice from professional health care providers. To avoid fat, protein, and calorie overload, these formulas should never b.

My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Tuesday, August 21, 2012. So what can we do about this? Our other biggest battle h.

Adventures of a 5 year old diva with Spinal Muscular Atrophy Type 1. Tuesday, March 17, 2015. How I miss you, Dee. You made life so much better. How sad is each day. You were my sunflower field. Sunday, February 22, 2015. TWO YEARS and FOUR MONTHS. and doing my best to keep my promises, little star. As the whole SMA community knows, this is no.

Learn about Ally, our family, and our journey with Spinal Muscular Atrophy. April 25, 2015 by Tina. If unable to join us, you can make a donation today, and help me reach my fundraising goal to help support the families who depend on MDA. Together, we grow stronger. April 9, 2015 by Tina.

Thursday, May 29, 2014. Thursday, February 6, 2014. 15 Things Never to Say to a Special Needs Parent. Dr Darla Clayton, Psy. Founder, Strong as Steel Adaptive Sports. All of the following examples of things not to say come from things that have actually been said to me or other special needs parents.

NEWLY DIAGNOSED FAMILIES SHOULD VISIT.